The Children’s Brain Tumor Family Foundation is a volunteer based 501(c)3 non-profit organization dedicated to raising awareness and funding research for rare and inoperable brain tumors.

The funds we raise support the Children’s Brain Tumor Project at Weill Cornell.

Our foundation was built by families who have been united by tragedy.

SEE OUR STORY

The Children's Brain Tumor Family Foundation is led by a group of families that have been united by the tragic diagnosis of a rare brain tumor, who all have incredible passion and belief in the importance of research being done, and great faith in the work underway at the Children's Brain Tumor Project.

Caitlin Downing

2007-2012

Allie Fisher

2009-2013

Joey Clayton

2007-2016

Juliana Donnelly

2007-2013

Sean Ries

Diagnosed 2012

Relapsed 2017

Daryn Clark

1962-2013

MEET OUR FAMILIES
RESEARCH MATTERS

Despite the amount of brain tumors, and their devastating prognosis, there have only been four (4) FDA approved drugs and one device to treat brain tumors in 30 years.

Source: National Brain Tumor Society

GET INVOLVED

SHOP AND SHOW YOUR SUPPORT

JOIN FORCES WITH OUR FAMILIES

2ND ANNUAL HEAD FOR THE HOLIDAYS 5K RUN/WALK

HELP FUND BRAIN TUMOR RESEARCH

UPCOMING EVENTS

Saturday, December 07, 2019

Our 2nd annual Head for the Holidays 5K is being planned now.  We are planning an event to take place in Parsippany, NJ on Saturday December 7th with a rain/snow date of Sunday December 8th.  For the 2nd year in a row we will also offer anyone the opportunity to become a "virtual runner" and run anytime, anywhere.  For more information on how to  get involved or sponsor next year's event, or if you are interested in hosting a "Head for the Holidays" 5K in your local area, please contact us. 

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SUPPORT & RESOURCES

The Children's Brain Tumor Family Foundations strives to provide support to families that are facing the challenge and difficult journey of a diagnosis of a brain tumor.  We look to connect people who are undergoing similar treatments or have children of similar ages and situations. We hope to point people to reliable and reputable sources of information and support.

 

Lastly, we aim to help them understand the research programs underway and trials that may be available to them and we provide the infrastructure and support they need should they wish to direct the funds raised by efforts undertaken locally towards the children's brain tumor project. 

Children's Brain Tumor Family Foundation
PO Box 623377
Oviedo, Florida 32762

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OUR MISSION

To raise awareness of pediatric brain tumors and support research at the Children's Brain Tumor Project at Weill Cornell.

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