The Children’s Brain Tumor Family Foundation is a volunteer based 501(c)3 non-profit organization dedicated to raising awareness and funding research for rare and inoperable brain tumors.
The funds we raise support the Children’s Brain Tumor Project at Weill Cornell.
Our foundation was built by families who have been united by tragedy.
SEE OUR STORY
The Children's Brain Tumor Family Foundation is led by a group of families that have been united by the tragic diagnosis of a rare brain tumor, who all have incredible passion and belief in the importance of research being done, and great faith in the work underway at the Children's Brain Tumor Project.
Caitlin Downing
2007-2012
Allie Fisher
2009-2013
Joey Clayton
2007-2016
Juliana Donnelly
2007-2013
Sean Ries
Diagnosed 2012
Relapsed 2017
Daryn Clark
1962-2013
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UPCOMING EVENTS
Saturday, December 07, 2019
It is with regret that we must inform everyone that we are cancelling the Head For The Holidays 5k Run/Walk on Saturday, Dec.7th.
Due to low registration we had no choice but to reschedule for next year.
We are sorry for any inconvenience this may cause. Refunds will be issued out this week for all registrants.
Thank you very much for your interest in the event. We remain committed to raising funds and awareness of the critical need for pediatric brain tumor research and we will bring The Head For The Holidays 5k back next year.
Sincerely,
The CBTFF Family
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SUPPORT & RESOURCES
The Children's Brain Tumor Family Foundations strives to provide support to families that are facing the challenge and difficult journey of a diagnosis of a brain tumor. We look to connect people who are undergoing similar treatments or have children of similar ages and situations. We hope to point people to reliable and reputable sources of information and support.
Lastly, we aim to help them understand the research programs underway and trials that may be available to them and we provide the infrastructure and support they need should they wish to direct the funds raised by efforts undertaken locally towards the children's brain tumor project.