The Children’s Brain Tumor Family Foundation is a volunteer based 501(c)3 non-profit organization dedicated to raising awareness and funding research for rare and inoperable brain tumors.
The funds we raise support the Children’s Brain Tumor Project at Weill Cornell.
Our foundation was built by families who have been united by tragedy.
SEE OUR STORY
The Children's Brain Tumor Family Foundation is led by a group of families that have been united by the tragic diagnosis of a rare brain tumor, who all have incredible passion and belief in the importance of research being done, and great faith in the work underway at the Children's Brain Tumor Project.
Caitlin Downing
2007-2012
Allie Fisher
2009-2013
Joey Clayton
2007-2016
Juliana Donnelly
2007-2013
Sean Ries
Diagnosed 2012
Relapsed 2017
Daryn Clark
1962-2013
MEET OUR FAMILIES
RESEARCH MATTERS
GET INVOLVED
UPCOMING EVENTS
Saturday, December 07, 2019
Our 2nd annual Head for the Holidays 5K is being planned now. We are planning an event to take place in Parsippany, NJ on Saturday December 7th with a rain/snow date of Sunday December 8th. For the 2nd year in a row we will also offer anyone the opportunity to become a "virtual runner" and run anytime, anywhere. For more information on how to get involved or sponsor next year's event, or if you are interested in hosting a "Head for the Holidays" 5K in your local area, please contact us.
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SUPPORT & RESOURCES
The Children's Brain Tumor Family Foundations strives to provide support to families that are facing the challenge and difficult journey of a diagnosis of a brain tumor. We look to connect people who are undergoing similar treatments or have children of similar ages and situations. We hope to point people to reliable and reputable sources of information and support.
Lastly, we aim to help them understand the research programs underway and trials that may be available to them and we provide the infrastructure and support they need should they wish to direct the funds raised by efforts undertaken locally towards the children's brain tumor project.