The Children’s Brain Tumor Family Foundation is a volunteer based 501(c)3 non-profit organization dedicated to raising awareness and funding research for rare and inoperable pediatric brain tumors, because even though brain tumors have the highest death rate of all childhood cancers, they have one of the lowest levels of research funding.
The CBTFF was founded in 2015 by families united in tragedy and heartbroken from the experience of having to watch their children and loved ones battle a devastating diagnosis.
The organization is designed to help grieving and frustrated communities convert their passion and anger into awareness, support, and donations for research that is critically underfunded and highly dependent upon financial contributions from the private sector.
The funds raised by the CBTFF support the Children’s Brain Tumor Project (CBTP) at Weill Cornell Brain and Spine Center. The CBTP is a research program founded in 2011 and aimed solely at rare and inoperable brain tumors that strike children.
Funds help cover the costs of a lab led by Drs. Mark Souweidane and Jeffrey Greenfield. Research is currently aimed at AT/RT, Gliomatosis cerebri, Diffuse infiltrative pontine glioma (DIPG) and Thalamic glioma.