A collection of resources, websites and support you may find helpful.

Family Support

Children's Brain Tumor Foundation

American Childhood Cancer Organization

Frequently Asked Questions

What is the Children's Brain Tumor Project?

The Children’s Brain Tumor Project is a research effort at the Weill Cornell Pediatric Brain and Spine Center, co-directed by Dr. Mark Souweidane and Dr. Jeffrey Greenfield. The Children’s Brain Tumor Project has a single goal: to bring hope to the hundreds of patients and families each year who confront the heartbreaking diagnoses of rare and inoperable pediatric brain tumors. To learn more visit

What happens to the monies raised by the Children's Brain Tumor Family Foundation?

All of the proceeds from donations and events go directly to the Children's Brain Tumor Project to support pediatric brain tumor research.

How can I find out more about brain tissue donation?

This is an extremely complex and emotional decision for any family to make.Please visit

Can you help me find others who have faced my child's diagnosis?

While this is not something we are formally set up to do, between us, our families have faced diagnoses of DIPG, low-grade Glioma, (e.g DNET), Gliomatosis Cerebri and GBM (aka Astrocytoma or Glioblastoma). We also come into contact frequently with other families facing other diagnoses. Please feel free to contact us and we'll try to help as best we can.

How can I make a donation?

You can donate online or if you would prefer to mail a check, please make it payable to "Children's Brain Tumor Family Foundation" and mail to 1945 W CR 419 Suite 1141-136, Oviedo, Florida 32766. Questions? Contact Us.