Our foundation is made up of volunteer families like yours.
Become a CBTFF Family
CBTFF was founded in 2015 by four families who were all impacted by the tragic diagnosis of rare, and in most cases, inoperable brain tumors.
Those four families (Cheering for Caitlin, Team Little Owl, TEAMSean and What's Your Fight?) went through the process of setting up a 501(c)3 and organizing themselves in order to systematically raise funds for pediatric brain tumor research that is both critically underfunded and vitally important to finding a cure to these devastating illnesses.
Each family, or team, had experienced tremendous local support, and wanted to channel that local support and passion into positive outcomes, but the task of setting up a non-profit and running it was overwhelming for any individual family to take on in a sustainable manner. Thus, the CBTFF was born.
The families that are part of the CBTFF still maintain their local teams and run local activities and events, many of which began when their loved one was waging battle against their diagnosis and are still especially comforting and meaningful to the families and their community.
The benefit is that they now have a support system for these activities. The CBTFF provides 501(c)3 status as the beneficiary of all activities as well as important infrastructure in terms of reporting, event registrations, donation portals and advice and guidance from other families.
All proceeds from monies donated to the CBTFF are sent to the Children's Brain Tumor Project, a research effort at the Weill Cornell Pediatric Brain and Spine Center, co-directed by Dr. Mark Souweidane and Dr. Jeffrey Greenfield.
The Children’s Brain Tumor Project has a single goal: to bring hope to the hundreds of patients and families each year who confront the heartbreaking diagnoses of rare and inoperable pediatric brain tumors. Financial support for this project comes from the families, friends, and supporters of the children, adolescents, and young adults diagnosed with these tumors. In the absence of major funding from government agencies or major foundations, the Children’s Brain Tumor Project is supported by those with the most at stake in this battle.
If you are interested in joining the Foundation or running any sort of activities or programs to benefit the CBTFF, please contact us and one of our board members will get back to you quickly.