CBTFF Makes $125,000 Contribution to the Children’s Brain Tumor Project at Annual Family Council Mee
Updated: Aug 28, 2019
Today, May 1st, 2018, is the first day of brain tumor awareness month. And today, the Children’s Brain Tumor Family Foundation (CBTFF) is honored to make their 3rd annual contribution to help support the phenomenal work being done at the Children’s Brain Tumor Project (CBTP).
We are proud to announce that this year’s contribution is $125,000. Our 2017 contribution was $110,000 and our 2016 contribution was $75,000.
Brain tumors are the leading cause of cancer related deaths among children, surpassing even leukemia. The CBTFF works diligently all year long to raise funds to help support research of rare and inoperable brain cancers. The families behind the CBTFF have all been touched by brain cancer in some way, many of them losing children and family members to brain tumors for which there is no cure currently.
Our annual contribution has been steadily increasing each year due to the amazing support and donations we receive directly and from those that donate in honor and support of the families who make up the CBTFF;
Allie Fisher, 2009-2013 - Team Little Owl
Caitlin Downing, 2007-2012 - Cheering for Caitlin
Daryn Clark – 1962-2013 – What’s Your Fight?
Joey Clayton, 007-2013 - Team Joey
Juliana Donnelly, 2007-2013 – Team Juliana
Sean Ries – Diagnosed 2012, Relapsed 2017 – TEAMSean
Throughout the year, our supporters generously made donations, purchased gold out gear or team swag, and attended one or more of our local fundraising events:
Cheering for Caitlin 5K – May
Volley to Beat Pediatric Tumors, Team Little Owl – June
Bands Together Against Pediatric Tumors, Team Joey, Team Julianna, TEAMSean – June
Designer Bag Bingo, Team Joey - September
Hoot Under the Stars Gala, Team Little Owl – October
We cannot thank you enough for your amazing support and generosity.
Today is also the 5th annual family council meeting for the Children’s Brain Tumor Project. This year the CBTFF is proud to sponsor the event which will be attended by at least 20 of the 70 plus families who work feverishly to support the CBTP and the work they do.
The family council meeting takes place during a full day in New York City. The families are joined by Dr. Mark Souweidane and Dr. Jeffrey Greenfield along with many of the staff from the research lab at the Weill Cornell Brain and Spine Center.
The Doctors share their vision for the upcoming year and give an update on the research currently underway which is aimed at AT/RT, Gliomatosis cerebri, Diffuse infiltrative pontine glioma (DIPG) and Thalamic glioma. It’s an emotional, but also very informative and inspiring day and provides an opportunity for families who have experienced similar tragedies to share their stories and provide one another with support, ideas and comfort. Our founding members met at their first family council meeting in 2014.
Once again, we thank you all for your ongoing support and dedication. We could not make a difference without you.